Monday, December 31, 2012

Our Christmas "Vacation"

Our vacation up to Utah wasn't all doom and gloom (although to be honest it kindof was).  We were still able to have some fun with family.

Went to the Newgate Mall and rode the train and played on the playground:

Went to the treehouse museum with Brooklyn and Mason.  Carson's favorite part was the parachute.  He was at that thing for over half an hour.  He loved pulling the parachute up the rope and then dropping them to see them float back down.  My job was to put the parachute back on the rope for him to do it all over again.

Tanners favorite part was the life size chess set.

 Went Bowling at BYU.  Carson loves to bowl.




We were also able to go to the sealing of our newest Mickelson cousin to his family

Saw the Ogden Christmas Lights

Opened the cousins Christmas gifts

Made and decorated a gingerbread train

Had the annual Forsyth Christmas party.  

The Grinchmas.

We ate some yummy food, did the 12 days of Christmas:
Carson was the partridge in a pear tree
and Tanner was the French hen, which he hated and mom had to take over.

We played bunco, and the kids hit the pinata
kissed under the mistletoe

and played the drums

Although a lot of our time was spent here:
and here:

At the Utah Valley Regional Hospital.  Spending time with Aaron.  Wouldn't want to be anywhere else.

Sunday, December 30, 2012

The following days




As a family we decided that we would go see Aaron on Sunday after church.  Katherine and Tim still haven't seen him yet, and we told them they don't have to see him, they can wait in the waiting room, but they need to come with the family for support.

Then late Saturday night my dad called, we were staying over at the Clarks, and he said that Aunt Sara had called and he rambled on.  I couldn't understand what he was saying except to say that he needed to be at the hospital right away and they would leave first thing Sunday morning.

Confused I called Sara to find out what she said to my dad.  She told me she had spoken to Aaron's nurse and got the details.  She explained it to me, but said she would send out an email to everyone.

Dear family, 

I had a candid discussion with Aaron's nurse Jared tonight.  We spoke for about 30 minutes and after talking with Liz, we felt it was important to share this update with everyone.  Please forward this to family members only- forgive me for not having everyone's addresses.   

I wanted to get an idea of how serious Aaron's brain injury was.  Something very telling was his status when he arrived to the Emergency Department:

1.  They did an assessment called a Glasgow Coma Scale (GCS) on his arrival.   The scale ranges from 1 to 15 with 15 being "normal".  When grading a brain injury, a score of 12-15 = mild brain injury; 8-12 = moderate brain injury; and less than 8 = severe injury.  Aaron's score was a 3- indicating a severe brain injury.  

2.  The initial Cat Scan showed the depressed skull fracture, swelling, bleeding, and herniation on the left side.  Blood in the brain is very irritating and contributes to more swelling which worsens the risk of herniation.  Herniation is when the brain has no room to swell so it begins to squeeze out of the hole in the base of the skull.  This can be very dangerous.  Because of these findings, Aaron was taken in immediately for the surgery.

3.  The surgery was to remove any bone fragments, remove any blood, and relieve pressure in the skull from brain swelling.  In Aaron's case they even had to shave a small portion of his brain in the left front to accommodate for this swelling. We must remain hopeful that this process was minimal and avoided important cognitive centers in the brain.  Overall, this factor is not really our main concern. 

4.  After surgery there is a fine balance in maintaining a low pressure in the brain.  This is called intra-cranial pressure (ICP). This is a number that the nurses will work hard to keep generally below 20.  Aaron's was very high initially, but today Jared reported they have been able to keep it between 5 and 15.  This is good.  To accomplish this they are having to continually drain spinal fluid from his brain.  This is a standard treatment and the body does replace this fluid.  

5.  Also to keep this number low, it is important to avoid stimulation and pain and anything that would cause his blood pressure to rise.  This is why for the first week we are asked to be quiet and not move or excite him.  In fact he is on a propofol drip which is the "Michael Jackson" drug.  It is causes an anesthesia like state.  With this medication on board it is challenging to get a truly accurate neurological assessment, but Jared stated today that his GCSwas 12. Which provides hope. 

6.  Last night Aaron did have changes in his pupils that were concerning as well as some reflex movement called posturing.  Meaning this movement was not purposeful in any way, instead indicative of deep involuntary reflexes.  This generally means that there has been an increase in swelling or even new bleeding.  They did the CT scan and did not find evidence of bleeding only additional swelling.  With this, they started him on a different IV fluid designed to pull fluid out from his body.  They are also giving a diuretic medication every six hours to keep his fluid status in check. 

7.  This said, it is important to know that the swelling of the brain after an injury like this peaks in 48-96 hours.  We are post-op day 1.  We are not out of the woods by any means.  These next few days will be critical for Aaron in terms of keeping the pressures down.  As a family, we have got to fast and pray hard that by Wednesday we may see the worst over and begin to look ahead.  

8.  By Wednesday or Thursday, they will begin to lighten the sedation and really be able to assess his neurological status.  Only then will we be able to determine the level of disability Aaron will face.  

Aaron is being well cared for.  The treatments they are using are standard and evidence based.  He is in the right hands.  Our job now is to stay informed and be present for Aaron, Liz, Michael, Daniel, Emily, Kat, Marilyn, and Tim.  I have suggested that we make an effort to ensure a member of the family is present during the day at the hospital, in order to stay informed of Aaron's status from the physicians and nurses coming and going.   I would encourage note taking while there and writing down questions that come up.  The next 4-5 days are crucial for Aaron, I will say it again- he is still vulnerable to decline. 

With love, hope, and faith 

Sara  

After learning this Brad and I felt best that we leave first thing in the morning too.  I guess even though we knew Aaron's condition was serious this really gave us a better understanding of just HOW serious it was and made us want to spend as much time with him as possible.  

We left the kids with the Clarks and rushed to Provo.  Everyone came; Mom, Dad, Kat, Marilyn, Andy, and Tim.  It was the first time Katherine and Tim had seen Aaron.  They haven't been ready until now. 

I'm worried about Tim.  He has taken it the hardest.  It was always just the two of them.  Him and Aaron.  We decided that Tim would talk to his school counselors and miss this week of school before the Christmas break.




It was a long day at the hospital.  Mostly just taking turns seeing Aaron.  We went over to Grandma and Grandpa Forsyth for dinner and to discuss a rotation of who could spend time with Aaron so that for the most part, someone is constantly there.  Tensions are high in the family and people are starting to get on each others nerves.

There was no change in Aaron's prognosis.  They thought he might be having seizures, but it turned out to be shivering which is basically chills you get from a fever.

Mom has decided to stay at the Ronald McDonald home across the street from the hospital.  Its like a hotel for families who have a loved one in the ICU.  Even though we have family close by its nice that mom is right across the street and can be with Aaron more often.

Tuesday, December 18 we picked Daniel up at the airport.  It was nice to have him home.  He wanted to go straight to the hospital.  He wasn't as shocked to see Aaron as the rest of us were.  I think because he has had more time to soak it in and has seen pictures.  Daniel is going to stay with mom at the guest house.

Wednesday, December 19 woke up to a fresh blanket of snow at the hospital.  It is a critical day for Aaron.  They are hoping to wake him up from the coma and to assess the damage done.  However it turned into a disappointing day when Aaron's ICP jumped to high and they had to put him back on the medication.  We also heard from the financial guy at the hospital that my parents are reliable for the financing.  It was a depressing day.  They will try to wake Aaron again tomorrow.

Went bowling that night to have some fun.  It did lift our spirits some although we all kind of did bad.  Carson had fun, he really likes bowling.  We went back to Ogden that night to spend some time with the Clarks, and missed Sara.  Aunt Sara came down and according to Marilyn took over the nurses job. Its nice to have Sara here.  Mom needed her and she makes us understand the medical terminology better. 





Trying to see if we can get Aaron on Medicare.  If my parents are responsible for the finances it will crush them.  Fingers crossed.

Thursday, December 20 we went to a sealing in the Logan temple.  John and Michelle Mickelson (Brad's aunt and uncle) adopted a little boy.  It was so comforting to be in the temple and to really understand that families are forever and that families are the most important thing in this life.  How appropriate being so close to Christmas.

Saturday, December 22 we held the annual Forsyth Christmas party.  It was a big party!  So many people came, Bob and his family came down from Jackson, the Hawkins, and most of Phillips family came, Matt, and of course Grandma and Grandpa.  It was the first time Uncle Bob has ever come to the Christmas party.  It was so nice to have all the family here supporting and loving Aaron.  

We had it at the guest house and mom decorated it with all of the decorations she used for the ward Christmas party.  It was a Grinch party.  We had yummy soups and sandwiches.  We did our 12 days of Christmas and played bunco.  It was really nice to end our trip with some uplifting family time.

Sunday, December 23 it was time for us to go back to Arizona.  Aaron was going to be taken off his medication again today to see if he would wake up.  Brad, Daniel, and I arrived at 7 and they had just put Aaron back on the medication.  He was off of it for only a half hour before they had to put him back on.  While off the nurse said that he didn't open his eyes, obey any commands, and got real agitated.  The lung doctor came in shortly after we got there and wanted to see how Aaron reacts while off the medication, so while there the nurse took him back off the medication.  It only lasted a couple minutes though and then Aaron's ICP jumped really high before they put him back on. 

It was so difficult to leave Aaron.  Especially leaving on such a low note.  I took a long time saying my goodbyes.  I told him how much I loved him and what a wonderful uncle he is to my boys.  I was really hopeful that that day he would wake up.  They keep telling us to have patience, but its hard.  The first few hours of the drive home was very somber.

Christmas Eve my mom called to tell us that when she went in to see Aaron his eyes where open.  What a wonderful Christmas present!  Then on Christmas day the whole family got to see him with his eyes open.  Wish I could be there to see it.  They said it takes him a while to focus, but follows your movement.  He also squeezes everyones hand like crazy.  Hard to tell if he recognizes anyone, and still doesn't follow commands.  With physical therapy they are able to have him sit up and then stand.  Mom says he looks pained.



Daniel said that Aaron tried to sit up to look at himself in the mirror.  Afterwards there was a tear in his eye.  Does he understand?

December 30,  Aaron is being transferred to a long term facility in Bountiful.  It will be nice to have him closer to my parents.

Saturday, December 29, 2012

Aaron

This is going to be a difficult post to write, but one that I must do.  I didn't want to wait too long to write it for fear that I might forget my thoughts, feelings, and small details.  That day seems such a blur already and I want to get it out while it is still fresh before it gets any more blurry.

Beware that this is going to be very long and full of graphic descriptions.

_________________________________________________________________

We have always gone up to Utah for Christmas.  Every year since we've lived in Arizona we've done this, but due to work schedule conflicts, Brad had to work the week of Christmas.  So we decided to go up to Utah a week and a half before to enjoy the festivities and to use up the rest of Brad's paid time off.  I really think it was meant to be.  We needed to be there through all of this.

We left Wednesday, December 12 mid-day after Brad got off working half day, and drove straight to Layton.  We got to my parents house around 1 am and we tried not to wake anyone.  We headed downstairs to where we were going to sleep.  Aaron was asleep on the basement couch.  Typical.  He prefers the couch most of the time to his own bed.  I wondered why Aaron was here though thinking that it is finals week and he should be down in Orem, but I didn't question it.  I had Carson say hi to Aaron and I think Aaron grumbled "oh hi Carson" before he rolled back over to sleep.  At least thats how I'm going to remember it.

I wish I would have woken him up to say hi.  He left early that morning to go back to school.  I didn't know that after that night everything was going to change and that that night could have been the last chance to "see" Aaron.

Thursday, December 13 we spent the day in Logan visiting Brad's grandparents and walking our old stomping grounds at USU.  We contemplated spending the night at Brad's parents, but all our stuff was still in Layton so we went back to the Murphy's and I'm so glad we did.

While on the drive to Layton I got a call from Stephanie Murphy (my cousins Scott's wife) who are in our ward back in Arizona.  She told me that my friend Bryna's husband suddenly passed away from a heart attack.  He was my age. 27.  Taking his son Cole (3 years old and Carson's best friend) on a father son camping trip.  He made it just a couple blocks before Cole said "his daddy took a deep breath and fell asleep."  I was devastated.  I couldn't imagine losing my husband so suddenly like that.  Carson asked Brad why mommy was so sad.  I slept in Brad's arms that night.

3 o'clock in the morning (December 14) my mom knocks on the door.  Its never a good sign when you're awaken that early.  "The hospital called, Aaron is unresponsive, can we borrow your car to drive to Provo (Aaron took my mom's car to Provo for the day)?"  Brad said he would drive.  Tim would stay with the kids.  We got up and dressed and out the door in 5 minutes.  While walking to the car I said to my mom "when something bad happens it comes in three's.  Whats next?"  I should have bit my tongue, I probably jinxed it, because that same day was the Sandy Hook Elementary shooting which killed 20 children.

My dad had called Uncle Phillip who lives in Provo if he could go to the hospital to check on Aaron since he lives so close.  Uncle Phil was a life saver that night.  Don't know what we would have done without him.

While on the drive to the hospital I was the messenger.  I called Kat and Marilyn.  I'm glad they sleep by their phones.  Uncle Phil called and said that Aaron was going in to get a MRI done.  Katherine called back and they talked to Aaron's girlfriend.  She said that it was just a concussion and that Aaron was going to be just fine.  We felt very relieved and hopeful.

It was 4 o'clock when we arrived at the hospital.  Uncle Phil greeted us as we entered and gave my dad a hug.  Grandma and Grandpa Forsyth arrived just shortly after we did, and then a Social Worker (who was an angel) came and whisked us away.  The social worker, Travis, told us that Aaron's condition was very serious and that they need to take him into surgery right away.  We were a little shocked since on the ride over we thought that everything was going to be all right.

Travis said that we could go see Aaron before surgery, but to prepare ourselves, because Aaron had a black eye, a neck brace, and a breathing tube.  He told us that the MRI showed a fracture to the skull and some swelling and bleeding.  They needed to get him into surgery as soon as possible.

I walked into the room and saw Aaron.  It really was shocking to see him like that.  Mom wouldn't come in.  She kept pacing the hallway wringing her hands and shaking her head.  Grandpa calmed her down a little and she did come in to see Aaron.

We later heard from Uncle Phil that they were allowing us to say our goodbyes since his injury was so grim.  I didn't think of it like that at the time.  I felt that he was going to make it out of the surgery just fine.  I guess it still hadn't sunk in the severity of Aaron's injury quite yet.

The doctors told us it would probably be 1 hour for the surgery.  It turned into 4.  It was a long time in the waiting room.  Everyone was on the edge of their seats or pacing the halls.  While in the waiting room Uncle Phil told us what he had found from Aaron's roommates about the accident.

Aaron and his roommates were drinking and they thought it would be fun if they could jump and catch onto a balcony.  The first one they did was too easy so they decided to go to higher balcony.  They were running down a hill that led to the apartments and two of Aaron's roommates successfully caught onto the balcony, but when Aaron did it he didn't get a good grip and he fell onto his back and then his head smacked onto the cement.  They said he fell 8 feet, but when we later went back to the "scene of the crime" it looked more like 12+ feet.

(site of the accident)

It was a stupid accident.  What where they thinking?  It makes you angry, but then how can you be angry at someone who is so hurt?  Its a mix of emotions.

His roommates where too drunk and scared they'd get into trouble, so instead of calling 911 they scooped him up and drove him to the hospital where they just dropped him off.  The roommates just wanted to run, but luckily a nurse was able to get out of them some information before they just took off.  Then shortly after Uncle Phil arrived at the hospital one of the roommates called claiming to be Aaron's brother.  Uncle Phil said "which brother?  The one in China?"  That made me smile.  So Uncle Phil talked to the roommate and got the whole story.  He said the roommates felt no empathy toward Aaron and were only scared that they would get into trouble.  Some "friends" they were.

It was a long 4 hours.  I was the messenger.  Making the calls and sending emails to family members letting them know what had happened.  I kept trying to get a hold of Daniel (who was in China doing study aboard) via Skype to let him know of the news, but he wouldn't log into his computer.  I was really anxious to speak to him.  He had to know and I couldn't get a hold of him.

Waiting in the waiting room I was very anxious and numb.  Uncle Phil brought us some water and pastries for breakfast, but he had to leave to go teach school.  He would come back after school to see how Aaron was doing. Dad kept trying to find any nurse coming out of the surgery to see if they had worked on Aaron.  Dad found one and when asked how the surgery was going, he said "fairly well."  Fairly well?  What did that mean.  It didn't comfort us much.

The surgeon Dr. Garner finally came in with the prognoses'.  It was 8 am.  It was worse then they thought.  Bone fragments had penetrated into the brain matter, his bruise is blossoming (getting bigger), the area damaged to his brain affects communication, and they had to shave a part of his temporal lobe to allow space for swelling.  We later found of from Aunt Sara (who is a nurse) that part of Aaron's brain was coming out of his skull fracture when they first started surgery.

The doctor told us he is not out of the woods yet by any means.  He will remain in a coma for at least a week because of the swelling.  Typically day 3-5 after the trauma is the worst for swelling so to prepare ourselves.  Even if Aaron does survive he will not be the same Aaron.  There has been too much damage.  It was tough news to hear.

Aaron was going to be moving to the ICU and they would allow us to see him in another half hour.  Mom and Dad went to go sign papers and while they were doing this Brad, Grandpa, Grandma, and I went upstairs to wait to see Aaron.  The nurse came and asked us to only have a couple come in at a time.  Brad and I stayed behind so Grandma and Grandpa could see him first because they had to get back home.  After they saw Aaron they came back to say goodbye to Brad and I.  Seeing Grandpa about to leave after he had been such a comforting presence through all this, made me cry for the first time since this happened.  I sobbed in his arms for what felt like forever, but it was probably only a few minutes.

Mom and Dad came back as well as Uncle Phil, it was his break at school, so the 5 of us went to see Aaron.  I went in holding Brad's hand.  Mom couldn't bear to go in.  She waited outside the door.  I can't imagine what she must be going through.  I know if it was one of my boys...

It was a shock seeing Aaron, but not as much of a surprise as I thought.  Maybe, because this is what I had been preparing myself for after we had spoken to the doctor.  Aaron's head was shaved, and like Grandma said earlier, he looks ready to go into the military.  I saw his black eye for the first time.  When I saw him earlier I must have just seen his good side.  It was a deep purple and very swollen.  I couldn't stay in there long at first.  I walked out and gave my mom a hug and tried to get her to come see Aaron.  She did, but still stayed close by the door.

The nurse told us we could only hold Aaron's hand.  We couldn't rub his arm or touch anything else.  We had to be very quiet. We don't want to over-stimulate him while his brain is healing.  I softly held his hand and cried.  "I'm sorry" was what I kept saying over and over to him.

We didn't stay long.  There wasn't much for us to do at this point except wait.  Plus we needed to get back home to the boys.  Marilyn came over to help Tim with them, but we still needed to go home.  It had been a long day already and it was only around 10 in the morning.

Carson and Tanner were very excited to see us.  Apparently when Carson woke up he told Marilyn that mommy was sad that daddy died.  Marilyn was confused and told Cason that his daddy didn't die.  We had to explain to Marilyn that Carson meant that it was his friend Cole's daddy that passed away.  Carson's only 3 he doesn't understand.

Around noon Daniel skyped.  I thought for sure he had gone to bed and wouldn't call till this evening (he's a day ahead).  It was 3 in the morning his time.  He went and saw a movie which is why he missed our attempts to reach him earlier.  He came home and saw my email labeled emergency and called.  He said he knew it had to be Aaron.  Marilyn, Tim, and I got on.  Marilyn just cried and couldn't talk.  Tim couldn't even look at Daniel and left.  So it left me to tell Daniel what had happened.  Daniel had a hard time.  He wouldn't look at us and was really chocked up.  After I had told him the basics he simply said "I'll call you back."  Daniel called an hour or two later.  He just needed some time alone.  I understood.  Daniel wouldn't be home for another 4 days.  We all wished it would be sooner.

I hadn't had a good nights sleep for 2 days in a row now and was running on empty, but I couldn't sleep.  How could I?  I don't remember what else we did that day except it was very somber.  So that evening we thought we'd get the boys out of the house and we went to the Clark's.  Brad, Brent, and Ryan gave me a blessing.  I'm so thankful for Brad.  He has been my rock through all this and his blessing was beautiful, comforting, and what I needed to hear.  I love him.

I slept like a log that night.


Friday, December 28, 2012

the Ol' stomp'n grounds

After our Thanksgiving trip to Utah, I was home for a week and a half before we turned around and drove back up (with Brad this time) to spend some time with the family around the Christmas holiday.  

On our first day there we went up to Logan, and although we go to Logan almost every trip we only really visit Brad's grandparents.  So this time we decided to walk around the USU campus.  It has been 6 1/2 years since Brad has graduated.  It felt so weird to be walking around.  It was finals week and was eerily quiet.  It felt like we were just here, but yet it feels forever ago.  A lot has changed since our good ol' college days. 





(someone was sad that the present in that bag was not for him!)

Wednesday, December 26, 2012

Blog much?


So remember when I said I turned my blog into a book?  Well I got my book for Christmas and look how huge it turned out!  330 pages worth of blog posts and that doesn't include this past year of posts.  It only goes to 2011.  Wow.

Having my blog turned into a hard copy really gets me excited.  I'm so glad I did this.  This blog really is my journal and I'm glad I'll always have a record of the memories.

Tuesday, December 25, 2012

Christmas Lights

It wouldn't feel like Christmas until we saw the Layton Christmas lights.  Our family went on the first night they turned them on and to our surprise we saw Santa there!  Carson was very excited and told him all about the Space Angry Bird toy he wants.  Tanner on the other hand...not so much.




Walk'n Man


Tanner took his first steps the day before his first birthday, but it was only 2 maybe 3 if we were lucky. However while up in Utah, Tanner just took off!  I felt a little sad that Brad was missing it, but it was exciting to see Tanner become so independent.  I feel bad that the video is out of focus (*cough* Tim!), but its still super cute.

(Side note:  Both Carson and Tanner started walking when they were 13 months)

Tuesday, December 11, 2012

Lanterns for Ethan


November 18, 2011 my cousin Ethan passed away suddenly at the young age of 22.  So in remembrance we lit lanterns on the year mark of his death.  It was a beautiful sight.  
We love and miss you Ethan!